Resources and Links
Research:Cooperative research centers (3) awarded funding in 2003 from the National Institutes of Health for study of the muscular dystrophies: University of Pittsburgh Medical Center, Joseph C. Gloriso, Ph.D.
University of Washington at Seattle, Jeffrey S. Chamberlain, Ph.D.
The University of Rochester, New York, Richard T. Moxley, II, M.D. Other prominent research centers: Penn State
Research Center for Genetic Medicine at Children’s National Medical Center at George Washington University
University of Iowa , Kevin P. Campbell, Ph.D.
University of Utah Muscular Dystrophy Center Patient/Family Resources:Charcot-Marie-Tooth Association FacioScapuloHumeral Society Families of Spinal Muscle Atrophy Harvard Neuromuscular Disease Project – Research from this project will result in a better understanding of the pathology of specific neuromuscular diseases and in new approaches to the treatment of the muscular dystrophies and myopathies. Genetic Testing for Neurological Conditions – The University of Washington at Seattle web site with information on genetic testing for myotonic dystrophy, spinobellar ataxia and fascioscapulohumeral muscular dystrophy Minnesota Department of Health – Resources for Early Intervention Muscular Dystrophy Association MDA Publications available in English and Spanish (scroll towards bottom of page) National Institutes of Health - Road Map Parents Project– A resource for families and patients with Duchenne muscular dystrophy Therapy Pools in Minnesota:Abbott Northwestern Hospital-Sister Kinney Institute
800 E. 28th Street
Minneapolis, MN 55407
Appointments: 612-863-4446 Center Therapy
530 East Second St.
Duluth, MN
Appointments: 218-786-5410 Courage Center-Golden Valley
3915 Golden Valley Rd.
Golden Valley, MN 55422
Appointments: 763-520-0375 Courage Center-St. Croix
1460 Curve Crest Blvd.
Stillwater, MN 55082
Appointments: 651-439-8283 Medical Advance Pain Specialists
2104 Northdale Blvd.
Coon Rapids, MN 55433
Appointments: 763-537-6000 Medical Advance Pain Specialists
7400 France Ave.
Edina, MN 55435
Appointments: 763-537-6000 Presbyterian Homes of Arden Hills
3220 Lake Johanna Blvd.
Arden Hills, MN 55112
Appointments: 651-631-6000x6936 Regions Hospital Therapy Pool
640 Jackson St.
St. Paul, MN 55101
Appointments: 651-254-4797 Ridges Hospital Physical Therapy
201 E. Nicollet Blvd.
Burnsville, MN 55337
Appointments: 952-892-2121 St. Francis Physical & Occupational Therapy
1661 Park Ridge Dr.
Chaska, MN 55318
Appointments: 952-448-5077
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