Philosophy of Care

Early and Aggressive Treatment

• The philosophy of the Minnesota CF Center is to diagnose and start appropriate treatment at as early an age as possible to prevent or attenuate the rate of disease progression.

• This program places strong emphasis on a prophylactic approach to some of the complications of CF, particularly those related to the pulmonary manifestations of the disease.

• Patients and families learn that CF, historically a fatal disease of infant and young children, is now compatible with life well into adulthood, if complications can be prevented or delayed. With the realization that children with CF can realistically look forward to living a productive adult life, hope replaces fear.

• CF is a life-long problem and we believe the best survival and best health will come when CF care is given in continuity by a team of CF caregivers from the moment of diagnosis till death. Our center includes pediatric and adult pulmonary specialists as primary caregivers, as well as pediatric and adult subspecialty consultants.

Multidisciplinary Approach

• Our focus is multi-disciplinary to treat the acquired complications of CF that affect many organ systems and present themselves in many guises at different ages.

• A team of dedicated specialists provides comprehensive care and works together to unravel the mysteries of CF.

• The CF Care Team teaches parents, patients, caregivers, students, trainees and the community.

Family Centered Care

Diagnosis is a crucial time for the patient and family. The Pediatric Nurse Practitioner coordinates the educational program, which includes teaching about genetics, physiologic, pathologic, social, psychological, pharmacological and other therapeutic measures.

The newly diagnosed patient and family are followed monthly in the CF Clinic for about a year for additional education and support concerning CF prophylactic care. Patients are then seen quarterly, which is the CFF standard, or more often if needed, for assessment of progress and early detection and treatment of complications. 

A nutritionist, respiratory therapist and social worker provide a yearly assessment and other support services as needed.