Care Provision Performance in Children

Current guidelines of care recommend that patients with cystic fibrosis be evaluated at an accredited CF Center at least quarterly. In addition patients should undergo pulmonary function testing at least two times a year and have a culture of their respiratory secretions done at least once a year.

Ideally 100% of the children seen should meet these guidelines for care. These are important aspects of patient care that are influenced by many factors, including geographic distance to the Center and insurance. However we monitor this closely and strive to see that the majority of our patients meet the minimum standards of care. Our current efforts are focused on identifying those factors that are limiting our ability to meet this benchmark for every child.

Current guidelines of care recommend that patients with cystic fibrosis be evaluated at an accredited CF Center at least quarterly. In addition patients should undergo pulmonary function testing at least two times a year and have a culture of their respiratory secretions done at least once a year.

The recommendation is also to increase the frequency of follow up for those patients that have more severe disease. Ideally 100% of the children seen should meet these guidelines for care. These are important aspects of patient care that are influenced by many factors, including geographic distance to the Center and insurance. However we monitor this closely and strive to see that the majority of our patients meet the minimum standards of care. Our current efforts are focused on identifying those factors that are limiting our ability to meet this benchmark for every child.