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Department of Pediatrics > Cystic Fibrosis Center > Internet Resources

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Internet Resources


Although there is a wealth of information available, how does one distinguish the “good” from the “bad”, the helpful from the possibly harmful? The most important consideration when taking and sharing information from the Internet is that your healthcare providers are still the ones to direct your health care program. Do not make changes in your treatment plan based solely on the basis of information taken from the Internet. It is important to discuss new ideas relating to your health care with your physician before changing your treatment plan. Here are some sites we have reviewed and found to be among the most informative and trusted.

* Clicking on the links will open a new browser window, to return to this site please close the new browser window.

Medical Resources 

 

General medical/drug information

www.medscape.com

Harvard Medical School consumer health

www.intelihealth.com

Government's health information site

www.healthfinder.gov

KidsHealth

www.kidshealth.org

Mayo Clinic Health Resource

www.mayoclinic.com

Patient education, drug information

www.webmed.com

 

 

CF Specific

 

Boomer Esiason Foundation

www.esiason.org

Breathing Room: The art of living with CF

www.thebreathingroom.org

Cystic Fibrosis Foundation

www.cff.org

Cystic Fibrosis Medicine

http://www.cysticfibrosismedicine.com/

International CF Adult Organization

www.iacfa.org

Medline Plus - Medical Encyclopedia

http://www.nlm.nih.gov/medlineplus/ency/article/000107.htm

National Library of Medicine

http://ghr.nlm.nih.gov/condition=cysticfibrosis

Norma Plourde list of CF sites

www3.nbnet.nb.ca/normap/CF.htm

Stanford University CF Center

http://cfcenter.stanford.edu/

 

 

Miscellaneous

 

Minnesota Health Insurance Network

www.mnhealthnetwork.com

 

 

List-Serves

 

Minnesota CF Community group

http://health.groups.yahoo.com/group/CFCommunity

Cystic-L

www.cystic-l.org

 

 

Support Groups/Support

 

National Parent-to-Parent Network

www.netnet.net / mums/

 

 

Transplantation and Organ Donation

 

All about Transplantation and Donation

www.transweb.org

American Organ Transplant Association

http://aota.schipul.net

Dept. of Health & Human Services

www.organdonor.gov

UNOS (United Network for Organ Sharing)

http://www.unos.org/

 

 

Fun Resources Just for Kids

 

Math Topics

www.gomath.com

Geared for elementary & middle school students

www.factmonster.com

Homework help site

homeworktips.about.com/mbody.htm

Public Broadcasting System

www.pbs.org/kids

Kidlink

www.kidlink.org

How Stuff Works

www.howstuffworks.com

National Geographic for Kids

www.nationalgeographic.com/kids

Crayola Kids

www.crayola.com

Kids Domain

www.kidsdomain.com/kids.html


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