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The University of Minnesota's Department of Pediatrics has developed the Alport Syndrome Treatments and Outcomes Registry (ASTOR) in order to increase knowledge about Alport syndrome and identify effective treatments for the disease. This website provides patients, families and physicians the opportunity to enroll in ASTOR along with important educational information.

Over the past 30 years we have learned a great deal about Alport syndrome. However, there is no proven treatment for Alport syndrome other than kidney transplantation. Results of studies in animals have suggested several promising potential therapies. Potential drug treatments that might delay or prevent the development of kidney failure exist but need to be evaluated through clinical trials.

Conducting clinical trials of possible treatments for Alport syndrome presents many challenges. Because Alport syndrome is not a common disease, informative clinical trials will require the collaboration of investigators and patients at multiple centers.