For Patients and Families

Thank you for our interest in our registry. Our hope is to enroll families and patients with a history of Alport Syndrome in a central registry for the purpose of gathering medical information to be used as a resource that will be used by patients, families, and physicians to help in the treatment of Alport syndrome.

ASTOR needs people with Alport syndrome who are willing to provide medical information and urine samples to our central office.

If you or a family member have Alport syndrome, please consider signing up to be a part of the registry (Enroll Now). In return for your help you will be contributing to a national effort to improve care for all patients with Alport syndrome.

Register Online

If you would like to sign up for the registry, you can let us know electronically.

Register here and we will contact you about the study.