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Department of Pediatrics > Psychology Internship > Faculty Information > Kendra Bjoraker, PhD, LP > Publications

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Publications


Tolar J., Orchard P.J., Bjoraker K.J., Ziegler R.S., Shapiro E.G., Charnas L. N-acetyl-L-cysteine Improves Outcome of Advanced Cerebral Adrenoleukodystrophy. Bone Marrow Transplantation 2007;39:211-215.

Khanna G., Van Heest A.E., Agel J., Bjoraker K., Grewal S., Abel S., Krivit W., Peters C., Orchard P. Analysis of Factors Affecting Development of Carpal Tunnel Syndrome in Patients with Hurler Syndrome After Hematopoietic Cell Transplantation. Bone Marrow Transplantation 2007;39:331-334.

Tolar, J., Orchard, P.J., Bjoraker, K.J., Ziegler, R.S., Shapiro, E.G., Charnas, L., 2006. N-acetyl-L-cysteine improves outcome of advanced cerebral adrenoleukodystrophy. Bone Marrow Transplantation. November 2006.

Bjoraker, K.J., Delaney, K., Peters, C., Krivit, W., Shapiro, E.G. 2006. Long-term outcomes of adaptive functions for children with MPS I. The Journal of Developmental and Behavioral Pediatrics. August 2006.

Khanna, G., Van Heest, A.E., Agel, J., Bjoraker, K.J., Grewal, S., Abel, S. Krivit, W., Peters, C., Orchard, P. 2006. Retrospective analysis of factors affecting development of carpal tunnel syndrome in patients with Hurler syndrome after hematopoietic stem cell transplantation. Submitted in the Journal of Biology of Blood and Marrow Transplantation.

Bjoraker, K.J. 2005. Appendix: Sample Neuropsychological IEP. In Rik Carl D'Amato, Elaine Fletcher-Janzen, and Cecil R. Reynolds, Handbook of School Neuropsychology. New York: Wiley.

Oz, G., Tkac, I., Choi, Y., Bjoraker, K. J., Shapiro, E. G., Charnas, L. R., Gruetter, R. 2002. Assessment of adrenoleukodystrophy lesions by high field MRS in non-sedated pediatric patients. Neurology Feb.2004;64:1-8.

Bjoraker, K. J. 2001. Dystonia. In C. R. Reynolds and E. Fletcher-Janzen (Eds.), The diagnostic manual of childhood disorders: Clinical and special education applications. New York: Wiley.

Professional Presentations and Abstracts

Charnas L., Orchard P.J., Bjoraker K.J., Ziegler R.S., Tolar J., Shapiro E. N-Acetyl-L-Cysteine Improves Survival and Neurologic Outcome in Late Stage Cerebral Adrenoleukodystrophy Following Hematopoietic Stem Cell Transplantation. 59th Annual Meeting of the American Academy of Neurology, Boston, April 28-May 5, 2007.

Doyen, C.J., Shapiro E.G., Bjoraker K., Orchard P., Charnas L., Whitley C.B. Data Management for the MPS I. Genzyme Registry Meeting, Salt Lake City, May 17, 2007.

Bjoraker, K.J., Shapiro, E.G., Delaney, K., Charnas, L. Krivit, W., Johnson, C. (December 2006). Quality-of-life and psychosocial outcomes in patients with MPS disorders who have undergone hematopoietic stem cell transplantation. Poster presentation at the WORLD Symposium 2006 presented by the Lysosomal Disease Network. December 6-9, 2006 in Orlando, Florida.

Doyen C., Shapiro E.G., Bjoraker K., Braunlin E., Orchard P., Charnas L., Erickson D., Whitley C.B. Mutlidisciplinary Team Approach for Diagnosis and Treatment of Mucopolysaccharidosis Type I. MPS I Registries Meeting. Poster presentation. July 15, 2006.

Shapiro, E.G., Bjoraker, K.J., Delaney, K., Whitley, C.B. (December 2006). Hippocampal functions in MPS I: A pilot study of memory encoding and visual spatial function. Platform presentation at the WORLD Symposium 2006 presented by the Lysosomal Disease Network. December 7-9, 2006 in Orlando, Florida.

Orchard P., Khanna G., Van Heest A.E., Agel J., Bjoraker K, Grewal S., Abel S., Krivit W., Peters C. Factors Affecting Development of Carpal Tunnel Syndrome in Patients with Hurler Syndrome after Hematopoietic Cell Transplantation. Oral presentation, 3rd Annual Lysosomal Disease Network WORLD Symposium, Orlando, FL, Dec. 7-9, 2006.

Bjoraker K., Shapiro E.G., Charnas L., Orchard P., Delaney K. Bone Marrow Transplant in Metachromatic Leukodystrophy: Neuropsychological Outcomes in Early and Late Disease Onset. Oral presentation, 3rd Annual Lysosomal Disease Network WORLD Symposium, Orlando, FL, Dec. 7-9, 2006.

Shapiro, E.G., Bjoraker, K.J., Orchard, P., Charnas, L., Doyen, C., Whitley, C. (October 2006). Changing neurocognitive outcomes in MPS I with advancements in therapy. Poster presentation at the 56th Annual meeting of the American Society of Human Genetics conference October 9-13, 2006 in New Orleans, LA.

Sandberg, S.L., Charnas, L., Braunlin, E., Bjoraker, K.J., Deanching, M., Hoganson, G., Rimell, F., Whitley, C.B. (October 2006). Treatment of multiple sulfatase deficiency with recombinant human arylsulfatase B (galsulfase, Naglazyme). Poster presentation at the 56th Annual Meeting of The American Society of Human Genetics conference October 9-13, 2006 in New Orleans, LA.

Bjoraker, K.J., Charnas, L., Whitley, C.B., Delaney, K., Shapiro, E.G. (February 2006). Neuropsychological function in attenuated MPS I: Possible decline of memory and visual spatial function. Poster presentation at the 34th Annual International Neuropsychological Society meeting in Boston, Massachusetts.

Bjoraker, K.J., Charnas, L., Whitely, C.B, Delaney, K., Shapiro, E.G. (October 2005). The natural history of cognitive abilities in Hurler-Scheie syndrome: Eight years longitudinal evaluation of three siblings treated with recombinant human alpha-L-iduronidase (laronidase, AldurazymeŽ. Poster presentation at the 55th Annual American Society of Human Genetics conference in Salt Lake City, Utah.

Peters C., Orchard P., Grewal S., Hegland J., Abel S., Johnson K., Kivisto T., Shapiro E.G., Ziegler R., Bjoraker K.J., Delaney K., Charnas L., Krivit W. Hematopoietic Stem Cell Transplantation for Hurler Syndrome: Lessons Learned, Unanswered Questions, and Future Directions. MSP Meeting, Mainz, Germany, 2004.

Shapiro, E., Bjoraker, K.J. (2004). Risk Factors Contributing to Neurolinguistic Development Following Hematopoietic Cell Transplant in Hurler Syndrome. Australian Society for the Study of Brain Impairment & International Neuropsychological Society (INS) Annual Meeting. July 2004, Brisbane, Australia.

Bjoraker, K.J., Boys, C., Pongonis, S., Charnas, L., Loes, D., Peters, C., Krivit, W.,
Shapiro, E. (2004). Developing disease stage markers in late-onset metachromatic leukodystrophy. Poster presentation at the American Society of Human Genetics conference in Australia.

Shapiro, E., Oz, G., Bjoraker, K.J., Charnas, L., Gruetter, R. (2004). Neuropsychological and neurochemical profiles in childhood adrenoleukodystrophy. Australian Society for the Study of Brain Impairment & International Neuropsychological Society (INS) Annual Meeting. July 2004, Brisbane, Australia.

Shapiro, E., Bjoraker, K.J., Charnas, L., Delaney, K., Ziegler, R., Peters, C. (2004). Central nervous system predictors of cognitive outcomes in severe MPS I. 8th International Symposium on Mucopolysaccharide and Related Diseases, July 2004, Rheingoldhalle Mainz, Germany.

Shapiro, E.G., Bjoraker, K.J., Charnas, L., Simonton, S., Whitely, C.B. (2004). Longitudinal neuropsychologic and neurologic findings in a mild form of Sly syndrome (mucopolysaccaridosis Type VII). Presented at the 54th Annual Meeting of The American Society of Human Genetics in Toronto, Canada October 24-29, 2004.

Pongonis, S., Bjoraker, K.J., Boys, C., Peters, C., Krivit, W., Shapiro, E. (2004). Developing disease stage markers to predict outcome after treatment in late-onset metachromatic leukodystrophy. Presented a poster at the 54th Annual Meeting of The American Society of Human Genetics in Toronto, Canada October 24-29, 2004.

Bjoraker, K.J. Presented Long term outcomes of cognitive and adaptive Functions for MPS I; poster on MLD and MRI findings; and presented on educational interventions for children with MPS I at the WORLD Lysosomal Disease Research Network Symposium May 14-16, 2004

Bjoraker, K.J., (2004). Long Term outcomes of cognitive and adaptive functions for MPS I. Presentation at WORLD Lysosomal Disease Research Network Symposium May 2004, Minneapolis, MN.

Bjoraker, K.J., (2004). Educational interventions for children with MPS I. Presentation at WORLD Lysosomal Disease Research Network Symposium May 2004, Minneapolis, MN.

Shapiro, E.G., Bjoraker, K.J., Charnas, L., Simonton, S., Whitely, C.B. (2004). Longitudinal neuropsychologic and neurologic findings in a mild form of Sly syndrome (mucopolysaccaridosis Type VII). Poster presentation for the American Society of Human Genetics conference in Australia.

Pongonis, S., Bjoraker, K.J., Boys, C., Peters, C., Krivit, W., Shapiro, E. (2004). Developing disease stage markers to predict outcome after treatment in late-onset metachromatic leukodystrophy. WORLD Lysosomal Disease Research Network Symposium May 2004, Minneapolis, MN.

Bjoraker, K. J., Gibbs, M.C., Ziegler, R. S., Charnas, L. R., & Shapiro, E. G. 2002. Neuropsychological function and localization in adrenoleukodystrophy. Poster presented at the 31st Annual Meeting of the International Neuropsychological Society in Honolulu, Hawaii.

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