Transplant Information Services receives requests for reports, data sets and analytical services from individuals and groups working in all areas of transplantation, e.g. physicians, coordinators, directors and researchers. The scope of uses roughly falls into the following areas:
• Standing Reports – ADT, CMS, Cover Letters, Waitlists, Referrals, Quality of Life
• Data Quality Monitoring – Demographic Characteristics, Primary Diagnosis, End-Point Verification, Waitlist Verification
• Data Sets – Complications, Biopsy Results, Laboratory Tests, Mailing Lists
• Analytical Services – Graft and Patient Survival, UNOS Data Verification, Requests for Information, Organ Offers, Incidence of Rejection
Requests are divided into those for clinical and research purposes. Clinical reports are used for clinical management of the transplant program; for example, verification of UNOS data, preparation of waitlists, and mailing lists. There is no charge for this service.
Research requests are hypotheses driven for the purpose of scientific publication. There is a charge for this work and before TIS begins work, the user must provide a CUFS number for billing, a signed data sharing agreement, IRB approval, and departmental approval.
The following are the necessary steps and forms (interactive Adobe PDF) for completing the process.
|
Clinical Requests |
Research Requests |
| 1. Complete the Clinical Data Request form. | 1. Complete the Research Data Request form. |
| 2. Obtain permission for release of the data from the transplant director for the appropriate program. | 2. Complete the Data Sharing Agreement between TIS and Transplant Director with Data Distribution Rights. |
| 3. Email form to tisrequests@lists.umn.edu. | 3. Provide IRB approval. |
| 4. Provide department approval. | |
| 5. Provide a CUFS number funding the work. | |
| 6. Email form to tisrequests@lists.umn.edu. |